Since 2019, A-BE-C has deepened its commitment to children with bladder exstrophy in Uganda with the A-BE-C Uganda Initiative, a team of passionate surgeons, nurses, and social workers who travel to Uganda each year. These volunteers pay their own way, leave their families behind, and work alongside Ugandan medical professionals to perform surgeries, provide training, and build sustainable local expertise.
Read MoreRaising Our Voices in Washington: A-BE-C at the AUA Advocacy Summit
A-BE-C proudly took part in the AUA Advocacy Summit in Washington, D.C.—a powerful event that brings together urologists, patient advocates, and policy makers to influence healthcare legislation and elevate the needs of the urologic patient community.
Read MoreUniting the World’s Brightest Minds: The 2025 IBEC Conference at CIVIL Hospital
Imagine a room filled with 51 of the world’s top pediatric urology specialists, all gathered with a single mission—to transform the lives of children born with bladder exstrophy. That’s exactly what happened at CIVIL Hospital, as it proudly hosted the 2025 International Bladder Exstrophy Collaborative (IBEC) Conference!
Read MoreAn Exstrophy Journey to India
Rachel Althizer is traveling with A-BE-C for the 2023 International Exstrophy Workshop in Ahmedabad, India, as a social worker to assist children and families with exstrophy as they prepare for surgery.
Read MoreKeep On Keeping On
We recently had the rare opportunity to get some words of wisdom from Australian, Tom Flood, who was born in 1930 with bladder exstrophy. In those days, very little was known about bladder exstrophy and no treatment options were available. His parents were told that Tom was not expected to survive and if he was not in pain, just to leave things as are. But Tom had other plans!
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