Get in Touch: 
  • Email Us
  • A-BE-C Blog
  • Find a Center of Excellence
Association for the Bladder Exstrophy Community
  • Canvas
    • WHAT IS BLADDER EXSTROPHY?
      • I’m New Here
      • Causes & Diagnosis
    • RESOURCES & EDUCATION
      • 2025 Annual Conference
      • Bathroom Toolkit
      • Bladder Exstrophy App
      • Catheter Information
      • Centers of Excellence
      • FAQs
      • Research & Articles
      • Support
      • Videos
      • Webinars
    • OUR IMPACT
      • Our Why
      • BE Dry
      • India
      • Uganda
      • What’s Next?
    • ABOUT US
      • Leadership
      • Medical Advisory Council
      • Adult Patient Advisory Council
      • Our Story
      • Contact
    • SHOP
    • GIVE
      • Give Now
      • Donate Monthly
      • Employer Match
      • Fundraise for A-BE-C
      • Physician Registration for 2025 India Workshop
Generic selectors
Exact matches only
Search in title
Search in content
Post Type Selectors
A-BE-C Blog
Find a Center of Excellence
Association for the Bladder Exstrophy Community
  • WHAT IS BLADDER EXSTROPHY?
    • I’m New Here
    • Causes & Diagnosis
  • RESOURCES & EDUCATION
    • 2025 Annual Conference
    • Bathroom Toolkit
    • Bladder Exstrophy App
    • Catheter Information
    • Centers of Excellence
    • FAQs
    • Research & Articles
    • Support
    • Videos
    • Webinars
  • OUR IMPACT
    • Our Why
    • BE Dry
    • India
    • Uganda
    • What’s Next?
  • ABOUT US
    • Leadership
    • Medical Advisory Council
    • Adult Patient Advisory Council
    • Our Story
    • Contact
  • SHOP
  • GIVE
    • Give Now
    • Donate Monthly
    • Employer Match
    • Fundraise for A-BE-C
    • Physician Registration for 2025 India Workshop
Faces of BE, bladder exstrophy
By Angie Kujath
May 3, 2019
9 Comments

Faces of BE Photo Book Now Available!

Our Faces of BE book, a photo book showcasing individuals with exstrophy from around the world, is now available for purchase!

In 2018, on a trip to Uganda to serve children and families with exstrophy, Executive Director Pamela (Block) Artigas, realized that many of the children she met had never seen another person with exstrophy. Many of them had been isolated from the rest of the world their entire lives, and had no access to resources to connect with others like themselves.

Thus, the idea for a picture book started to take shape. We thought it would be a wonderful resource to take around the world to help show individuals with exstrophy that there are others just like them.

Thank you to everyone who contributed — we had an overwhelming response allowing us to create a beautiful resource to share around the world. This book is a perfect example of how our wonderful community of exstrophy families can come together to create something extraordinary.

Click here to order your copy!

 

Tags: bladder exstrophy Faces of BE
Register Now for the 2019 Exstrophy Conference
02 May, 2019
A-BE-C is Excited to Announce Newest Additions to Advisory Board
06 May, 2019

Related Articles

One Act of Kindness Can Change Everything

ABEC adult patient advisory council in washington, DC

Raising Our Voices in Washington: A-BE-C at the AUA Advocacy Summit

India | Bladder Exstrophy | IBEC

Uniting the World's Brightest Minds: The 2025 IBEC Conference at CIVIL Hospital

Recent Posts

  • One Act of Kindness Can Change Everything 02 Jul, 2025
  • Raising Our Voices in Washington: A-BE-C at the AUA Advocacy Summit 24 Apr, 2025
  • Uniting the World’s Brightest Minds: The 2025 IBEC Conference at CIVIL Hospital 25 Feb, 2025
  • Mission Accomplished in Uganda 19 Nov, 2024
  • Now Available: 2024 International Exstrophy Conference Videos 28 Oct, 2024

Social

Association for the Bladder Exstrophy Community

505 Beachland Blvd. Ste: 1-#180
Vero Beach, FL 32963

Email: [email protected]

TaxID: 68-0252009

Sign up for our newsletter to receive updates, new webinars and more!

SUBSCRIBE NOW
Copyright ©2025 Association for the Bladder Exstrophy Community. All Rights Reserved

About        News      Privacy Policy      Terms of Use