Rosina comparte la historia de su hija, Fátima, también conocida como “Mily”, y su viaje con extrofia cloacal en el Children’s Hospital Los Angeles.
Read MoreRosina’s Perfect Miracle
Rosina shares the story of her daughter, Fatima aka “Mily”, and their journey with cloacal exstrophy at Children’s Hospital Los Angeles.
Read MoreCHOP – Thoughts on COVID-19 Crisis
We have been amazed at our ability as humans to pivot as our reality changed. We have learned about and adapted to this “new normal.” The outpouring of volunteerism that I have seen on our team has been impressive.
Read MoreThe US-India Bladder Exstrophy Collaborative
Since 2009, a team of surgeons, anesthesiologists, social workers, and other healthcare providers from hospitals in India and the U.S. have worked together to help more children in Asia and Africa receive the complex surgery necessary to address bladder exstrophy.
Read MoreARTICLE: Patient-reported outcomes in adult females with bladder exstrophy
An article based on a survey conducted in 2019 by Seattle Children’s and A-BE-C regarding adult females with exstrophy and their long-term sexual, reproductive, and urinary outcomes has been published.
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