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A-BE-C Blog
Find a Center of Excellence
Association for the Bladder Exstrophy Community
  • WHAT IS BLADDER EXSTROPHY?
    • I’m New Here
    • Causes & Diagnosis
  • RESOURCES & EDUCATION
    • 2025 Annual Conference
    • Bathroom Toolkit
    • Bladder Exstrophy App
    • Catheter Information
    • Centers of Excellence
    • FAQs
    • Research & Articles
    • Support
    • Videos
    • Webinars
  • OUR IMPACT
    • Our Why
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    • India
    • Uganda
    • What’s Next?
  • ABOUT US
    • Leadership
    • Medical Advisory Council
    • Adult Patient Advisory Council
    • Our Story
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  • SHOP
  • GIVE
    • Give Now
    • Donate Monthly
    • Employer Match
    • Fundraise for A-BE-C
    • Physician Registration for 2025 India Workshop

Raising Our Voices in Washington: A-BE-C at the AUA Advocacy Summit

ABEC adult patient advisory council in washington, DC
by Angie Kujath
Posted on April 24, 2025
in
India, Uncategorized

A-BE-C proudly took part in the AUA Advocacy Summit in Washington, D.C.—a powerful event that brings together urologists, patient advocates, and policy makers to influence healthcare legislation and elevate the needs of the urologic patient community.

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Uniting the World’s Brightest Minds: The 2025 IBEC Conference at CIVIL Hospital

India | Bladder Exstrophy | IBEC
by Angie Kujath
Posted on February 25, 2025
in
India, Uncategorized

Imagine a room filled with 51 of the world’s top pediatric urology specialists, all gathered with a single mission—to transform the lives of children born with bladder exstrophy. That’s exactly what happened at CIVIL Hospital, as it proudly hosted the 2025 International Bladder Exstrophy Collaborative (IBEC) Conference!

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Mission Accomplished in Uganda

Global Care Uganda | Association for the Bladder Exstrophy Community
by Angie Kujath
Posted on November 19, 2024
in
Uncategorized

This was our 5th trip to Uganda, and while every year leaves us feeling blessed, accomplished, exhausted, fulfilled, and yes, even stressed, this year was different.

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26 Comments
4065 Views
Homepage, Living with Bladder Exstrophy, Video

Now Available: 2024 International Exstrophy Conference Videos

October 28, 2024
By Angie Kujath
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Dr. Joao Luiz Pippi Salle Receives 2024 Humanitarian Award

Dr. Pippi Salle | Association for the Bladder Exstrophy Community
by Angie Kujath
Posted on September 13, 2024
in
Uncategorized

A-BE-C recently presented its Richard W. Grady Humanitarian Award to Dr. Joao Luiz Pippi Salle, Professor of Urology, SickKids Hospital and Co-Director of the Center for Pelvic Reconstruction.

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Recent Posts

  • Raising Our Voices in Washington: A-BE-C at the AUA Advocacy Summit 24 Apr, 2025
  • Uniting the World’s Brightest Minds: The 2025 IBEC Conference at CIVIL Hospital 25 Feb, 2025
  • Mission Accomplished in Uganda 19 Nov, 2024
  • Now Available: 2024 International Exstrophy Conference Videos 28 Oct, 2024
  • Dr. Joao Luiz Pippi Salle Receives 2024 Humanitarian Award 13 Sep, 2024

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