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A-BE-C Blog
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Association for the Bladder Exstrophy Community
  • WHAT IS BLADDER EXSTROPHY?
    • I’m New Here
    • Causes & Diagnosis
  • RESOURCES & EDUCATION
    • Annual Conference
    • Catheter Information
    • Centers of Excellence
    • FAQs
    • Research
    • Support
    • Videos
    • Webinars
  • OUR IMPACT
    • Why?
    • India
    • Uganda
    • BE Dry
    • What’s Next?
  • ABOUT US
    • Leadership
    • Advisory Council
    • Our Story
    • Contact
  • GIVE
    • Give Now
    • Donate Monthly
    • Employer Match
    • Fundraise for A-BE-C
    • Activate AmazonSmile

El milagro perfecto de Rosina

by Angie Kujath
Posted on July 17, 2020
in
Centers of Excellence, Living with Bladder Exstrophy

Rosina comparte la historia de su hija, Fátima, también conocida como “Mily”, y su viaje con extrofia cloacal en el Children’s Hospital Los Angeles.

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Rosina’s Perfect Miracle

by Angie Kujath
Posted on July 15, 2020
in
Centers of Excellence, Living with Bladder Exstrophy

Rosina shares the story of her daughter, Fatima aka “Mily”, and their journey with cloacal exstrophy at Children’s Hospital Los Angeles.

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CHOP – Thoughts on COVID-19 Crisis

by Angie Kujath
Posted on July 6, 2020
in
Centers of Excellence

We have been amazed at our ability as humans to pivot as our reality changed.  We have learned about and adapted to this “new normal.” The outpouring of volunteerism that I have seen on our team has been impressive.

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The US-India Bladder Exstrophy Collaborative

A-BE-C | US - India Collaborative
by Angie Kujath
Posted on June 22, 2020
in
India, Video

Since 2009, a team of surgeons, anesthesiologists, social workers, and other healthcare providers from hospitals in India and the U.S. have worked together to help more children in Asia and Africa receive the complex surgery necessary to address bladder exstrophy.

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ARTICLE: Patient-reported outcomes in adult females with bladder exstrophy

ABEC | Seattle Children's Study
by Angie Kujath
Posted on June 22, 2020
in
News, Research

An article based on a survey conducted in 2019 by Seattle Children’s and A-BE-C regarding adult females with exstrophy and their long-term sexual, reproductive, and urinary outcomes has been published.

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Recent Posts

  • El milagro perfecto de Rosina 17 Jul, 2020
  • Rosina’s Perfect Miracle 15 Jul, 2020
  • CHOP – Thoughts on COVID-19 Crisis 06 Jul, 2020
  • The US-India Bladder Exstrophy Collaborative 22 Jun, 2020
  • ARTICLE: Patient-reported outcomes in adult females with bladder exstrophy 22 Jun, 2020

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