As 2025 draws to a close, the Association for the Bladder Exstrophy Community (A-BE-C) reflects on a year defined by expanded global reach, strengthened resources, and meaningful community connections. From international collaboration to new tools for patients and families, the past year underscored the importance of empowering individuals through trusted information and supportive networks.
Read MoreStrengthening Global Connections for the Bladder Exstrophy Community
The Association for the Bladder Exstrophy Community (A-BE-C) recently joined international support organizations from around the world for the first-ever Global Congress on Advocacy and Community Collaboration—a landmark gathering dedicated to improving care, awareness, and connection for individuals and families affected by bladder exstrophy.
Read MoreIntroducing the Adult Exstrophy Provider Directory
We are thrilled to share some exciting news that has been months in the making. A-BE-C has officially launched our…
Read MoreUganda 2025: Building Access to Care Across East Africa
This September, A-BE-C returned to Uganda for our 6th annual surgical workshop at EMERGENCY Children’s Hospital, providing expert surgical care and clinic services for more than 100 children and families from across East Africa.
Read MoreDr. Joseph Borer Honored with the 2025 Richard W. Grady Humanitarian Award
We are proud to celebrate Dr. Joseph Borer, a world-renowned pediatric urologist and surgeon, as the recipient of this year’s Richard W. Grady Humanitarian Award which was recently presented by Dr. Evalynn Vasquez at the A-BE-C Annual Exstrophy Conference. This recognition reflects not only his extraordinary contributions to the field of urology, but also the compassion, dedication, and humility he brings to every patient and family he serves.
Read More