Dr. Paul Merguerian discusses the management and long term outcomes of children with bladder exstrophy and epispadias, the initial management of pelvic osteotomies, and the goals of long-term management.
Read MoreBE Informed about Catheters launches with Assessment and 8 Healthy Habits
Catheritization or “cathing” is a fact of life for many bladder exstrophy patients. The topic triggers many questions and concerns…
Read MoreTimes of India features story of cross cultural support from young patient
“…a five-year-old abandoned Ugandan girl, born with her bladder outside her body, will undergo surgery with the help of funds…
Read MoreIn the News – Young Patient Raising Money for Young Girl in Uganda
[lead]You can help bladder exstrophy patient Mick Hullinger fund surgeries for other children around the world with bladder exstrophy by making…
Read MoreWebinar: Exploring the Gene Mutation Discovery
Dr. Heiko Reutter is a world renown researcher in the field of pediatrics and human genetics. In this webinar Dr. Reutter will share his research and insights on the discovery of a genetic mutation associated with bladder exstrophy.
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