Sabyr’s family hopes that one day their son will be able to sit up on his own and maybe, if…
Read MoreAnnette’s future with bladder exstrophy
When seventeen-month-old Annette was first born with bladder exstrophy, her mother assumed her condition was fatal. “I did not understand…
Read MoreFailed Primary Exstrophy Closure Webinar Recording
Dr. Gearhart provides details about what makes a successful primary exstrophy closure, why some closures fail, how to prevent failed closures, the types of failures and the treatment of failed closures.
Read MoreWebinar: Long Term Management of Bladder Exstrophy
Dr. Paul Merguerian discusses the management and long term outcomes of children with bladder exstrophy and epispadias, the initial management of pelvic osteotomies, and the goals of long-term management.
Read MoreBE Informed about Catheters launches with Assessment and 8 Healthy Habits
Catheritization or “cathing” is a fact of life for many bladder exstrophy patients. The topic triggers many questions and concerns…
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